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CNADC > PPA & Frontal Dementia > FTD/PPA Support
   
 

Frontotemporal Dementia (FTD)/Primary Progressive Aphasia (PPA) Support

Family Caregiver Contact List

The following is a list of caregivers of persons with Frontotemporal Dementia (FTD) or Primary Progressive Aphasia (PPA). All have given permission for their names and contact information to be placed on this website and are available and willing to be contacted. We recognize that opportunities for caregivers of persons with FTD and PPA to meet each other are very limited and hope that this is a useful resource. If you have questions or feedback, please contact us at CNADC-Admin@northwestern.edu


Spouse of person living with PPA

Spouse of person living with FTD

Lost a family member as a result of PPA/FTD

  • Paul Caponigri
    468 Ashton Court
    Schaumburg , IL 60193
    (847) 373-3265
  • Deborah Cohn
    3922 Manitou Way
    Madison, WI 53711
    wcohn@aol.com
  • Chad Monteith
    1324 W. School
    Chicago, IL 60657
    (773) 525-0848
    cm4213@sbc.com
  • Bridget Jenkins
    hjen@iafrica.com
    PO Box 866
    SUN VALLEY 7985
    South Africa

Adult Child of Person with PPA

Adult Child of Person with FTD

  • Kim Hart
    1165 E. 61st St. Apt. 3
    Chicago, IL 60637

Family Member of Person with PPA

Young Adult Child (20’s) of Person with PPA

Young Adult Child (20’s) of Person with FTD

Person living with PPA

PPA Online Support Group

This group exists to exchange information among and support those who care for persons with primary progressive aphasia ( PPA ), including PPA persons with Front-Temporal Dementia ( FTD ) and related dementias.

The group began in May 2002. We currently have 130 members. There are a few PPA and/or FTD patients who have subscribed. We have a few non-US members, but most are from the US. To subscribe, send a message to: PPA-support-subscribe@yahoogroups.com

Once their request is approved, they can send message to the group at: PPA-support@yahoogroups.com

If you would like to be removed from this listing, please email us with your request.

 

  
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