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Resources
Local Resources
- Northwestern University Feinberg School of Medicine
Cognitive Neurology & Alzheimer’s Disease Center
http://www.brain.northwestern.edu
- Clinical Services
Northwestern Memorial Faculty Foundation
Neurobehavior & Memory Health Clinic
675 N. St. Clair, #20-100
Chicago, IL 60611
To make an appointment call: 312-695-9627
- Education
Frontotemporal Dementia & Primary Progressive Aphasia
Caregiver Education & Support Conference & Monthly Support Group
Call 312-908-9432 for more information
- Support Group
Frontotemporal Dementia & Primary Progressive Aphasia Monthly Support Group
Call 312-908-9432 for more information
National Resources
- The Association for Frontotemporal Dementias
http://www.ftd-picks.org
Email: info@ftd-picks.org with "AFTD" in the subject line
Toll-free Helpline: Call 866-507-7222 and leave a message and someone will get back to you, generally within 24 hours if it is a weekday.
FTD Education & Information
Support Groups
Financial/Legal Information
- Disability Information
If the patient is working and needs to file for disability, it is best to speak to their employer as well as the local social security office. Disability benefits are usually obtained as long as your impairment does not medically improve and you cannot work.
Social Security's Toll-Free Number: 800-772-1213
Internet address: www.ssa.gov
You can obtain more information on resources from your local Alzheimer's Association.
The Alzheimer's Association, national number: 1-800-272-3900
www.alz.org
- Legal Matters
An "elder law" attorney can assist you with legal and financial planning.
The National Academy of ElderLaw Attorneys: 520-881-4005
www.naela.org
Home Care Services
- Area Agency on Aging
For caregiver support groups, respite providers, and other caregiving services.
Eldercare Locator: 800-677-1116
www.eldercare.gov
- ARCH National Respite Network and Resource Center
Call to find local respite providers: 800-473-1727
www.chtop.com/ARCH
Language Specific Resources
- National Aphasia Association
156 Fifth Ave., Ste 707,
New York, NY 10010
800-922-4622
www.aphasia.org
Includes Facts & Readings, Research, NAA Pen Pals, Support Group Services, What’s New, and I Want to Help pages
- Aphasia Hope—A Global Public Nonprofit Charitable Foundation
www.aphasiahope.org
- American Speech-Language-Hearing Association
www.asha.org
- Healthlink USA
www.healthlinkusa.com/22C.html
Sources of Communication Materials
Books
- What If It's Not Alzheimer's? - A Caregiver's Guide to Dementia
Edited by Lisa Radin & Gary Radin, Prometheus Books, 2003
- Losing LouAnn by Clinton Erb, Holistic Education Press, 1996.
Articles
Other
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