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Researcher/PPA Databases
International PPA Database
(Work in progress: suggestions welcome)
This database contains information on diagnosis, education, age
of onset, imaging results, autopsy, and other details.
The purpose is to pool information from around the world and create
a unique resource for research and patient care. If you contribute,
you will be listed for patient referral and you will be able to
use the database for your research. You will also be able to post
calls for collaboration if you need data, tissue, etc. Patient confidentiality
will be observed. You will be credited for each submission. The
materials you contribute will not be used for publication without
your consent. Specialized information such as ApoE and autopsy results
may be posted or kept at each relevant contributing center, to be
made available only by specific request.
NOTE: The PPA database has been taken offline while we update our site (02/12/2005)
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