Northwestern University Feinberg School of Medicine

Northwestern University Feinberg School of Medicine

About Dementia

Living with bvFTD

The psychological, social, family and financial issues that affect individuals with frontotemporal dementia are drastically different from those that affect individuals with Alzheimer's type dementia. When dementia occurs earlier in life, issues such as working, teenage children and financial stress are different from the issues dealt with by individuals who are older and most likely retired. Planning for the family's financial security and for the education of children becomes a difficult prospect when an individual is faced with a dementing illness in the prime of his/her working career. The nature of the symptoms themselves are often embarrassing to family members and there may be loss of friends and other sources of social support. Finally, most adult day programs and residential care facilities are not equipped to address the special needs of the younger patient, especially if the behavioral symptoms are difficult to manage. As more is known about the disease, more policy changes may come into effect. Some residential care and adult day programs are recognizing the needs of the younger dementia patient and are beginning to offer services to meet their needs. Before making any decisions, it is best to investigate your options.

Depending on severity, a patient with impaired comportment may not be able to manage their daily activities without supervision. They may be at risk for harming themselves or being victimized because they would not be able to recognize their limitations or use proper judgement. Driving is usually unsafe for persons with this diagnosis.

Fortunately, there are steps that can be taken to provide a secure environment for the diagnosed person and obtain help for family:

This page last updated Jun 19, 2012

Cognitive Neurology and Alzheimer's Disease Center
320 E Superior, Searle 11
Chicago, IL 60611
Phone: 312-908-9339
Fax: 312-908-8789
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