Northwestern University Feinberg School of Medicine

Northwestern University Feinberg School of Medicine

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FTD/PPA Family Caregiver and Professional Education and Support Conference

2012 FTD/PPA Family Caregiver and Professional Education and Support Conference - Saturday, March 24, 2012

Thorne Auditorium, Rubloff Building
375 E. Chicago Avenue, Chicago, IL 60611

In collaboration with the Association for Frontotemporal Degeneration and the National Aphasia Association
Sponsored in part by the Glen and Wendy Miller Family Foundation

This years' conference was designed for both family caregivers and and health care professionals. The day opened with a lecture on the state of FTD/PPA research and treatment by Northwestern physician, Dr. Diana Kerwin.

This year's keynote speaker was Dr. Geri Hall, advance practice nurse from Banner Alzheimer's Institute – Phoenix, who has lectured and published widely on behavioral interventions and communication strategies in dementia, specifically FTD and PPA.

A panel of clinicians and caregivers followed the keynote lecture. Afternoon breakout sessions and a closing plenary by Dr. Jennifer Medina, instructor in psychiatry and behavioral sciences at Northwestern University, concluded the day.

This educational activity is being co-provided by Northwestern Memorial Hospital- NM Academy and the Cognitive Neurology and Alzheimer's Disease Center (CNADC)

Conference Materials:

Breakout Session PowerPoint Presentations


2011 Frontotemporal Dementia (FTD) and Primary Progressive Aphasia Caregiver Education and Support Conference

Over 300 people from across the United States, Canada and Ireland attended this year's FTD/PPA Caregiver Conference making it the largest in the event's history. Specifically designed for family caregivers of persons with FTD and PPA, participants were updated on current CNADC research and services followed by two very well-received presentations by Bradley F. Boeve, MD – Professor of Neurology, Mayo Clinic Rochester and Deborah Reed, MD – Assistant Professor of Psychiatry and Behavioral Sciences, NUFSM and Neuropsychiatrist with Northwestern's Neurobehavior and Memory Clinic. A panel presentation with Dr.'s Boeve, Reed and three caregiving family members, facilitated by Jaimie Robinson, MSW, rounded out the morning session. Several breakout sessions were offered for families in the afternoon, including Managing Behaviors, Families with Children and Teens, Communication Challenges in PPA, Genetics and FTD/PPA and a support group for persons with PPA.

The response to the day was very positive and many expressed gratitude for the valuable information and the opportunity to meet others. As one participant wrote – "(I have a) much better understanding of the disease and what's ahead. We are not alone in this! Thank you".

This year's conference was generously supported in part by the Association for Frontotemporal Degeneration and the National Aphasia Association.

Question & Answer Session:

Answered by Joseph Cooper, MD, Darby Morhardt, MSW, LCSW, Mary O'Hara, AM, LCSW, Jaimie Robinson, MSW, LCSW, Emily Rogalski, PhD, HyungSub Shim, MD, and Christina Wieneke

Materials and Resources from the 2009 Caregiver/Professional Education Conference

Sandra Weintraub, PhD "Research Update on FTD and PPA"

Questions and Answers from the Panel discussion

FTD/PPA Conference Book

FTD/PPA Resources

This page last updated Jun 15, 2012

Cognitive Neurology and Alzheimer's Disease Center
320 E Superior, Searle 11
Chicago, IL 60611
Phone: 312-908-9339
Fax: 312-908-8789
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